support Friends.org

An Opportunity To

Do Good

Galatians 6:10

Support Mark & Na'Cole...

Hello!

We are Mark and Na'Cole Vanderwarf.

Thank you for stopping by our page to consider our situation.

As we’ve journeyed through the realization of Na’Cole’s disability, learning to manage her invisible and chronic illnesses, and reaching her physical limitations, we have come to a point where we find ourselves falling short and spreading ourselves thin. So, we are reaching out and asking for helping hands to come alongside us.


Mark is juggling work full time and all the household items, as well as caring for most, sometimes all, of Na’Cole’s daily needs. It would be an absolute blessing to Mark to have help with some household items from time to time and for someone to sit and aid Na’Cole when Mark is working, has a networking event, a meeting away from home, or serves at church on Sundays. Also long-term poor health circumstances can lead to isolation, so a visit with Na’Cole, as well as one with both Mark and Na’Cole from time to time, would also be a blessing!

We would greatly appreciate your helping hands. Please make yourself at home here and explore the site to learn more about how you can support your friends.

Thank you for your time and considerations!

Founder

Founder

Mark & Na'Cole

BLOG

Life Updates

blog image

Happy Very Belated New Years! and Post-Procedure Update

January 23, 20243 min read

“For I know the plans I have for you, declares the Lord, plans for welfare and not for evil, to give you a future and a hope.”

- Jeremiah 29:11

Hiya!

Thank you for the prayers, meal support, and all your support during this last occipital nerve blocks procedure and recovery! Truly! 

Boy, oh Boy. This recent procedure and time of recovery has been a doozy for us.

In general, right after receiving an occipital nerve block one can expect not to be able to move hardly at all for about 4 days. I, for some reason, had trouble with my arms and hands for almost ten days, used them excitedly to make Christmas reels, and then had a setback for another couple of weeks. This also impacted my ability to sit up on my own. So, it has been really nice to recover some use as I’ve been able to do so this new year. 

However, no one explains that the procedure also affects one's ability to think, process, and word recall for speaking. 🙈

Perhaps it indirectly affected some aspect of the encoding process for me, but, after two rounds of nerve blocks with the same “crawling through thick mud” brain fog to understand and communicate, I find myself having to trust, wait, and rest on the Lord and know that He is being glorified in it. For God is good and His timing is perfect, even when my hopes are otherwise.

With that in mind, this old Facebook memory timely reaffirmed my seemingly endless waiting:

“I do not know why there is this difference, but I am sure that God keeps no one waiting unless He sees that it is good for him to wait. When you do enter your room, you will find that the long wait has done you some kind of good which you would not have had otherwise. But you must regard it as waiting, not as camping. You must keep on praying for light: and of course, even in the hall, you must begin trying to obey the rules which are common to the whole house. And above all you must be asking which door is the true one; not which pleases you best by its paint and paneling." 

- C.S. Lewis, Mere Christianity

Praise the Lord that my waiting is not endless and it is not without purpose!

For me waiting is a different type of pressure cooker, or refining process, through which more of myself - my flesh, and my desires - are revealed and I get to see where in my life, even discern how, to further reach to gain Christ. 

I think in midst of any type of pain and isolation, it could be easy to revert to old ways - to grow callous and reach for easy whims and old angers. So, as I wash myself with scripture, renewing my mind, I'm glad and refreshed to be reminded "to put off your old self, which belongs to your former manner of life and is corrupt through deceitful desires, and to be renewed in the spirit of your minds, and to put on the new self, created after the likeness of God in true righteousness and holiness." (Ephesians 4:22-24) And through Christ Jesus, God will help me do the rest! (Ephesians 4:25-32) 🙌

Thankfully, these particular ailments from the my type of nerve blocks have started to diminish. I really hope to hold onto these lessons, carrying them into the next thing, circumstance, and season that is laid before me.

Needing Jesus moment by moment, multiple times a day, and praising the Lord all the way,

And May God have all the glory!

Thank y'all for your time! Much Love, Na'Cole. 💕 🤗

Occipital Nerve BlockBrain FogWaitingTrustGodJesusHope
blog author image

Na'Cole

Back to Blog

Types of needs we have

Service Opportunities

How You Can Help

Sitter for Na'Cole

Help and assist - AM & PM time slots
3hrs

Home Help for Mark & Na'Cole

Helping Hands - Friday or Saturday
1.5hrs

Visit with Na'Cole

Encouraging one another - Wednesday & Friday afternoons
2hrs

Transportation for Na'Cole

Appointments - pickup or dropoff on Thursday
20mins

Visit with Mark and Na'Cole

Friendly faces and edify - one Saturday a month
2hrs

Remote Visit with Na'Cole

Sweet Reunions - digital smiles & catch up once a month
2hrs

Meals for the Vanderwarf Family

Meal Delivery - occasional provisions & eats
15mins

there is Opportunity Almost Daily to help

Welcome To OUr Home

Our Journey

We've been married since January 2011 and knew there was something not quite right with Na'Cole's health in 2012. Unfortunately, in 2013, we realized that we had to start advocating for her health to figure out the root cause of her increasingly concerning flareups and source of constant pain when she had to start scaling back in work, serving her church in many capacities, and from social activities. It's been a long, nonlinear road to answers, with hopes of recovery, all to uncover her genetic disorder, which led to additional subsequent chronic illnesses.

In 2017, we finally found out that Na'Cole was born with a rare genetic disorder called Ehlers Danlos Syndrome, affecting her body systemically. Her condition is progressively degenerative and has caused additional and related disorders.

In October 2022, Na’Cole was diagnosed with a related autonomic nervous system dysfunction called POTS and began treatments for the major flareup. After further testing, in January 2023 her doctors confirmed that she is also dealing with a reactive Mast Cell situation and began treatment for MCAS.

There are no cures.

Since Christmas 2022, Na’Cole has been learning to manage these new chronic disorders, applying what to do at home and best physiotherapy practices. She graduated from Cardiac Rehab for POTS in March 2023 and continues to strive to maintain her progress, working out on physical therapy equipment while being surrounded by healthcare professionals. However, she struggles with exercise intolerance and continues to deal with fainting and pre-fainting symptoms in addition to her daily struggles with EDS, chronic pain, and fibromyalgia. Though some symptoms currently can be more predictable, all of this greatly limits Na’Cole, continuing to leave her homebound and often bedridden.

Therefore, any and all the extra help, prayers, and visits would be amazing.

Thank you for reading our journey, thus far.

God bless!

Prayer

If We Come To Mind...

Prayers are always appreciated. We may also post requests and praises from time to time, and ask that you join in.

“… praying at all times in the Spirit, with all prayer and supplication. To that end, keep alert with all perseverance, making supplication for all the saints,” ‭‭

Ephesians‬ ‭6‬:‭18

Further Ways to Support

Gift Ideas

Messages

Messages and cards are a welcomed treat. Na'Cole would love to hear from you!

e-Gifts

Gift Cards or Venmo can be used to provide a meal or for simply giving.

Wishlist

Wishlists are helpful for knowing exactly how to support one another.

NEW

Our Latest Jewelry

20% OFF Entire Wedding Collection

Vivamus suscipit tortor eget felis porttitor volutpat. Praesent sapien massa, convallis a pellentesque nec, egestas non nisi. Curabitur aliquet quam id dui posuere blandit.

Thanks For Following Along

Thank you for visiting our page and considering to lend a helping hand.

We really appreciate it. We also truly covet your prayers.

Both are an immeasurable blessing to us.

You can keep up with us through Na's social links below.

We look forward to seeing you at church and when we're able to gather in person throughout the week to live life alongside one another,

Lord willing.

In all we do and in every circumstance, may God have the glory!

@ Copyright - SupportFriends.org | All rights reserved