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Support Mark & Na'Cole...

Hello!

We are Mark and Na'Cole Vanderwarf.

Thank you for stopping by our page to consider our situation.

As we’ve journeyed through the realization of Na’Cole’s disability, learning to manage her invisible and chronic illnesses, and reaching her physical limitations, we have come to a point where we find ourselves falling short and spreading ourselves thin. So, we are reaching out and asking for helping hands to come alongside us.


Mark is juggling work full time and all the household items, as well as caring for most, sometimes all, of Na’Cole’s daily needs. It would be an absolute blessing to Mark to have help with some household items from time to time and for someone to sit and aid Na’Cole when Mark is working, has a networking event, a meeting away from home, or serves at church on Sundays. Also long-term poor health circumstances can lead to isolation, so a visit with Na’Cole, as well as one with both Mark and Na’Cole from time to time, would also be a blessing!

We would greatly appreciate your helping hands. Please make yourself at home here and explore the site to learn more about how you can support your friends.

Thank you for your time and considerations!

Founder

Founder

Mark & Na'Cole

BLOG

Life Updates

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Post Nerve Block Update

October 04, 20233 min read

First, I’m so thankful for the texts and prayers last Friday morning! ❤️ What a blessing and comfort it was to receive your prayers. Thank you!!!

The procedure on Friday went really well and I ended up having two nerve blocks applied, but recovery has been on the rough side. Once the anesthesia wore off, it really began to hurt worse. It wasn’t a small or thin needle at all used for the nerve blocks. I was told it would take 5-7 days for the nerve block to kick in for the occipital neuralgia pain, which I feel is starting to kick in today.

During the procedure, we knew that it went well because of the instant relief that started to melt away all of the pain. I started crying - joyfully crying. I didn’t know how much air, just air, irritated my cheeks. The relief that washed over me was overwhelming. And, I could distinctly discern my TMJ pain from the rest of my skull and face pains. This showed me that my doctors were spot on with the occipital neuralgia diagnosis.


As the anesthesia wore off, the pain increased and soreness, swelling, and stiffness abounded across my head, neck, and shoulders. I didn’t expect that. Lol! I was so weak, I couldn’t move Ink from his snuggles on my legs. (He’s an 8 lb little cutie!) I couldn’t turn my head or flex my neck without a lot of pain. The occipital neuralgia was also worse if I moved too much. I get it though… I basically had two sizable puncture wounds on each side of my neck from the two injected nerve blocks.

I’ve been able to sleep a bit more over the weekend, though! A total blessing!! And I’m praying for things to continue to improve while also working on not getting my hopes up. Just trying to take it as it comes and see what could be possible in the moment.


I’m starting to mull over what it means to “get my hopes up” on something. For me, I’m seeing that if I get my hopes up for plans or expectations, I could start making those things an idol. If I start to “get my hopes up”, it’s an opportunity to check myself before I wreck myself. I get to make sure that I’m not making my emotions and expectations, my wants and desires, into demands. Meaning “I want this so much I have to have it, or else… my life is horrible, I’m so disappointed, I’ll be angry, I’ll give so-n-so the cold shoulder, I’m judging someone, etc.”

Wants and desires are not a bad thing, in and of themselves. It’s what I do with it, the information, the experience, the result, in light of my walk in Christ as I strive to uphold the fruits of the spirit and in hopes to glorify God. That matters. Being excited about or looking forward to something can absolutely be joyful and godly.

So in this situation, I wait to see what He has gifted and do what can as I able to do so, all in Christ, praising Him all the while! ✨🙌🏼✨

I am so grateful for this procedure. And I am so grateful for You. God bless! Love, Na’Cole.

PlanProcedureRecoveryDeep ThoughtsHopePraiseGratitude
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Na'Cole

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Types of needs we have

Service Opportunities

How You Can Help

Sitter for Na'Cole

Help and assist - AM & PM time slots
3hrs

Home Help for Mark & Na'Cole

Helping Hands - Friday or Saturday
1.5hrs

Visit with Na'Cole

Encouraging one another - Wednesday & Friday afternoons
2hrs

Transportation for Na'Cole

Appointments - pickup or dropoff on Thursday
20mins

Visit with Mark and Na'Cole

Friendly faces and edify - one Saturday a month
2hrs

Remote Visit with Na'Cole

Sweet Reunions - digital smiles & catch up once a month
2hrs

Meals for the Vanderwarf Family

Meal Delivery - occasional provisions & eats
15mins

there is Opportunity Almost Daily to help

Welcome To OUr Home

Our Journey

We've been married since January 2011 and knew there was something not quite right with Na'Cole's health in 2012. Unfortunately, in 2013, we realized that we had to start advocating for her health to figure out the root cause of her increasingly concerning flareups and source of constant pain when she had to start scaling back in work, serving her church in many capacities, and from social activities. It's been a long, nonlinear road to answers, with hopes of recovery, all to uncover her genetic disorder, which led to additional subsequent chronic illnesses.

In 2017, we finally found out that Na'Cole was born with a rare genetic disorder called Ehlers Danlos Syndrome, affecting her body systemically. Her condition is progressively degenerative and has caused additional and related disorders.

In October 2022, Na’Cole was diagnosed with a related autonomic nervous system dysfunction called POTS and began treatments for the major flareup. After further testing, in January 2023 her doctors confirmed that she is also dealing with a reactive Mast Cell situation and began treatment for MCAS.

There are no cures.

Since Christmas 2022, Na’Cole has been learning to manage these new chronic disorders, applying what to do at home and best physiotherapy practices. She graduated from Cardiac Rehab for POTS in March 2023 and continues to strive to maintain her progress, working out on physical therapy equipment while being surrounded by healthcare professionals. However, she struggles with exercise intolerance and continues to deal with fainting and pre-fainting symptoms in addition to her daily struggles with EDS, chronic pain, and fibromyalgia. Though some symptoms currently can be more predictable, all of this greatly limits Na’Cole, continuing to leave her homebound and often bedridden.

Therefore, any and all the extra help, prayers, and visits would be amazing.

Thank you for reading our journey, thus far.

God bless!

Prayer

If We Come To Mind...

Prayers are always appreciated. We may also post requests and praises from time to time, and ask that you join in.

“… praying at all times in the Spirit, with all prayer and supplication. To that end, keep alert with all perseverance, making supplication for all the saints,” ‭‭

Ephesians‬ ‭6‬:‭18

Further Ways to Support

Gift Ideas

Messages

Messages and cards are a welcomed treat. Na'Cole would love to hear from you!

e-Gifts

Gift Cards or Venmo can be used to provide a meal or for simply giving.

Wishlist

Wishlists are helpful for knowing exactly how to support one another.

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Thanks For Following Along

Thank you for visiting our page and considering to lend a helping hand.

We really appreciate it. We also truly covet your prayers.

Both are an immeasurable blessing to us.

You can keep up with us through Na's social links below.

We look forward to seeing you at church and when we're able to gather in person throughout the week to live life alongside one another,

Lord willing.

In all we do and in every circumstance, may God have the glory!

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